While living in the Bay Area of California, I felt as if there were a lot of resources for families on the autism spectrum. I watched former co-workers open up therapy service organizations for autism, and the universities (such as Stanford and the not-so-local UC Davis) had entire departments and programs dedicated to research and/or community outreach. There seemed to be something going on all the time, from walks and conferences, to trainings and meetings…there was always something to learn and gain.
You can imagine my surprise when I moved back home to South Florida and found nearly nothing compared to where I came from. Granted, there are some organizations that say they do the very things that I am looking to do, but I still hear from my community that there aren’t any services being provided to them. There is a disconnect somewhere.
Because of the wording of the laws in Florida (many of which only specify ABA as an acceptable intervention), many of the agencies that provided such services when I last lived here no longer can due to the guidelines. I am also noticing fewer professionals in my area who are trained or have experience with autism, so that is contributing to the resource desert as well. It is a strange and unfortunate situation all around.
So, what is SPARC hoping to do in the midst of this disconnect and resource shortage? Well, while we may not provide direct therapy, we do want to give families, communities, schools/daycare centers, and potential employers a better understanding of autism and encourage advocacy. That is how the system is improved. Awareness leads to Acceptance, Acceptance leads to Affirmation, and Affirmation leads to Advocacy.
It’s time to create an oasis in the desert.