Quick Autism News Roundup

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A couple of big things happened in the last two weeks or so with autism, and I wanted to compile them.

House Passes Autism Act: The US House of Representatives voted to allow $1.8 billion to be allocated to autism (research, programs, training, etc.) with the continuation of the CARES Act through 2024. The bill now goes to the US Senate, but it needs to pass fairly quickly; the current CARES Act expires at the end of September, and its lapse may mean a lapse in funds for services and research across the country.

What happened, Sesame Street?: I am in the process of writing a blog post for this, but ASAN (Autistic Self-Advocacy Network) has severed ties with Sesame Street after the children’s company teamed up with Autism Speaks for its latest round of PSAs.

“New” Ideas About Autism: I file this under “Wait, you didn’t know this?” A research team concludes that (surprise!) autistic individuals have reasons for their behaviors like lack of eye contact and often do desire social interaction to some degree.

“My experience of living with autism”: I always appreciate first-hand accounts from autistic individuals, especially since they almost always shatter at least preconceived notion I have heard from neurotypicals. This writing is from May, but I wanted to share it.

Countdown!

We are only a few days away from the first West Palm Beach class “Hello Autism” this Saturday!

I checked out the space today to make sure the equipment and setup would work, and yes, it will have a similar setup to this. I want this to be a discussion as much as it is a workshop, and I want it to become a regular occurrence.

If you haven’t reserved a spot yet, it’s FREE and there are still spaces available! Click here to go directly to the event and register!

Autism and Genetics

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For far longer than it should be needed, a vast majority of us in the autism community have said that genetics may account for a far bigger role in autism than any of the other factors being explored. Now, a study of over 2 million people in several countries is saying similar…to the tune of 80%.

This study not only included 2 million people, but covered a 16 year span. There have been many studies confirming the same findings, but none have been this huge. And while the study is not perfect (what study is?), it is leading researchers to a new field of exploration and questions regarding the role genetics play in autism, along with the role “environmental” factors may still play.

But how does one look for a history of autism in their family, especially if there are no concrete diagnosis to be found (which is often the case, particularly in minority families)?

The key lies in education; being familiar with the symptoms and listening to that instinct that something may not be adding up on the developmental milestones.

The key lies in communication: talking to the professionals (doctors, psychiatrists, etc.) and speaking up about your concerns.

It also lies in understanding: knowing what autism is, is not, and looking at it with empathy instead of sympathy.

The links to the study and an article about the study are below.

There is also a link to my first FREE autism class happening on August 3 in South Florida, which will give you a head start on all of those aforementioned keys.

Article on Study: Majority of autism risk resides in genes, multinational study suggests

A summary of the study itself in the Journal of the American Academy of Child & Adolescent Psychiatry (the full study has to be ordered through the Journal): Recurrence Risk of Autism in Siblings and Cousins: A Multinational, Population-Based Study

SPARC Guidance FREE “Hello, Autism” Class!

1st “Hello Autism” Class Info!

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We are excited and thrilled to announce that our first community class, “Hello, Autism” is set and ready! Here are the details:

Class: Hello Autism, the first class in SPARC’s community training series

Date: Saturday, August 3, 2019

Time: 2:30-4:30pm

Place: Mandel West Palm Beach Public Library at 411 Clematis Street, West Palm Beach, FL 33401 (Hibiscus Room on the 3rd floor)

Cost: FREE!

RSVP: Email sparcguidance@gmail.com with your name, number of attendees, and zip code. You will also be added to a mailing list to get updates on this and other classes from SPARC, including parking/transportation information.

PLEASE NOTE: RSVP is required for this class, as there is VERY LIMITED seating for it. We can only take a maximum of 20 people for the class. Preference will be given to those in the 33407, 33404, and 33401 zip codes. Don’t worry, though; if enough people email us, we will definitely arrange another class in the near future. Those who attend this class will receive a discount for the second class in the series, which focuses on the school system and autism. Please visit the Classes page for more information about the various class series.

 

I love Sesame Street

ipanews_3586256d-6c91-4719-9c82-71774b49529f_1       John E. Barret/PA Images

I remember watching this show a lot as a child. Just to further date myself, I remember the Big Bird movie “Follow That Bird,” and I can faintly recall visiting Sesame Place in Texas before it closed.

So of course, seeing one of my favorite childhood shows stepping up for families and communities warms my heart. They have so many great resources and tools online for families of all types, including those touched by autism. Topics include autism (of course), community violence, financial education, and more! This website is a treasure chest of information, activities, and even professional development webinars. If you haven’t visited it yet, the link is below. The more resources, the better!

Sesame Street in Communities

Miss Florida + Autism

 

The Miss Florida pageant is about to get its first autistic contestant.

I included a link to the article (which includes a video) below, but much like the concerns that rose from Kodi Lee on “America’s Got Talent,” the reaction of the newscasters was a bit…well, if you watch the video, you will see what I mean.

Tampa Bay woman will be first contestant with autism to compete in Miss Florida

Why SPARC Exists

These two recent stories, each with widely different results, illustrate very clearly why this company exists.

 

First, to train more people to respond like this:

Mother credits Universal Orlando employee for helping calm autistic child (click on the “see more” in  the mother’s Facebook entry for her entire story…it’s worth the read)

 

And second, to train more people to refrain from nonsense like this:

Teacher mocks autistic student with ‘most annoying’ award

 

Kudos to @UniversalORL for the actions of your obviously well-trained staff!

And to the Bailey Preparatory Academy and the Gary Community School Corporation…I’m available to offer autism trainings. 🙂