UC Davis’ MIND Institute is launching a study about anxiety and autism for children ages 8-12 years old. They are looking to see what types of treatments are best for these individuals. The focus seems to be on CBT (Cognitive-Behavioral Therapy) versus medications. Participants get free treatment and apparently $100 for each assessment performed. This is mainly for those in the northern California area.
Here is the link to the video discussing the launch of the study:
You can also check the “Research” tab on the study’s page to see all of the studies they are currently running. I have heard several people from the MIND Institute speak at various events, and I love the work that they do.
First, yes, it’s been awhile. A lot has been going on over here, including some big decisions that will probably be announced in the June site update.
A recent situation has caused me to take a hard look at the idea of “parent buy-in.” It’s a bit of a buzzword/concept in my field, and it centers around the goal of getting the family invested in our therapy work. Too often, I see parents who simply hand their child/children off to the therapist/interventionist/specialist and basically say, “Here, fix them.”
The truth, parents and guardians, is that we cannot “fix” your child. First of all, many of us don’t really like the idea of “fixing” anyone. It implies that the individual is broken, inferior, or not up to some invisible set of societal standards. Second, we are in your home/community or you are in our office a few hours a week.
In order for your son or daughter to become the best that they can be, they need YOU.
In order for us to be able to find those sparks in your son or daughter, we need YOU.
I always try to tell families at the very beginning that this is a team effort, and everyone must be invested in it. The clients I worked with who blossomed the most were the ones who had the support and follow-through from their parents/guardians, their siblings, and even extended family. The families who were sponges, hungry for information, skills, and concrete examples…these were the cases that led to more fulfilled lives. No, the child didn’t get “fixed.” The child got love and acceptance, and that made them work at becoming more confident, loving, and ready. All children want to receive acceptance and praise from their parents/loved ones, I truly believe that.
When the families meet us at the table, ready to make the world of their family unit a better place, amazing things happen. I’ve seen it over and over again.
I have a saying when meeting families: “My end goal is to essentially be fired because you don’t need me anymore.” I don’t want your family to become dependent on me or my team. I want you to apply learned skills and build relationship bonds so that you don’t need my “expertise” anymore.
Us professionals want to see the child AND the family unit flourish and thrive independent of any services or interventions.
WebMD released an article this week about the expectations and experiences of work for adults on the autism spectrum. While the study has not been peer-reviewed yet, it does appear to offer a solid look at what the office environment feels like for a population who is (unfortunately) still trying to get their foot through the door.
I appreciate the fact that one of the biggest takeaways from this article for me was the fact that autistic adults were not completely sold on the idea of formally training employees about autism. This was mostly because they did not want to be singled out. This was also listed as the reason that they were hesitant about having a different rate of pay. While my trainings have been with non-profit volunteer teams who regularly interact with autistic individuals or families affected by autism, I can understand the hesitation of having an “autism training” at a for-profit company. It’s something for me to think about, for sure.
It is an interesting article overall, and the findings were presented this past Wednesday at the International Society for Autism Research’s annual meeting. The direct article link is below.
Don’t worry, I didn’t miss the fact that April is Autism Awareness Month. Now that I’m settled, I wanted to give my own take on the month.
I saw this quote a few days ago, and it stuck with me. I’ve experienced this recently myself, and it does make you laugh when people think that they know you and actually don’t have a clue.
This was one of the first lessons I learned working with special needs children, particularly those on the autism spectrum. I had to learn that a vast majority of my clients knew exactly what they needed; the problem was that us “experts” weren’t listening. We were assuming that we knew what they needed. So naturally, we were met with resistance. For some of these so-called experts, the solution to that resistance is to push back harder, to literally break the spirit of the client so that they conform. Even in the beginning, I had an issue with this.
Instead, I chose to drop into the client’s world. I wanted to see how they saw things. While I can probably never know exactly how the world is to them, this simple state of being made me more aware of their awareness. The repeated actions aren’t mindless, but an attempt to regulate (same as how neurotypicals have quirks like biting our nails when nervous…except here you’re nervous most of the time). In doing this, I also quickly learned to never talk about them (in a negative way, especially) within earshot, because just like anyone else, they can tell if you’re talking about them. They may not be able to verbally tell you, but trust me, it will come out in some way. I’ve had to remind many parents and peers about this.
Finally, having said all of that…they can tell you more about themselves that I ever could. In these final days of April, I urge you to follow an autistic individual’s blog, Instagram, Tumblr, etc. You will see, hear, and feel the struggles and triumphs from those who live it, rather than those who work with them. I’ve included a few I follow that are awesome people (and yes, the number of women listed was kind of on purpose). If you are on the spectrum and have a social media presence (or know someone who does), leave your links in the comments as well. I’m going to try and highlight more of your voices going forward!
*Pretty accurate depiction of what the view was like for most of my road trip, give or take a few highway lanes.
Sorry for the lack of updates! My main focus has been this move from CA to FL, which finally happened late last week. After dwindling my belongings down to whatever fits inside a Mazda 3, driving a huge chunk of I-10, and trying to adjust to the multiple time zones I had just rode/driven through, I am finally feeling a bit more centered.
I stumbled upon this article on girls with autism that I wanted to share. I find it interesting because it is from Australia, and they have developed a separate set of guidelines for diagnosing girls/women on the autism spectrum. Having had autistic girls as clients in the past, their guidelines look pretty spot on to me.
I do believe that it’ll take a special set of guidelines to diagnose girls and women, and I think this will go double for minority girls and women who already tend to get the short end of the diagnostic stick. In any case, it’s a good, quick read and a piece that I think practitioners here in the States should take note of.
This is a video from CBS about some of the programs major companies like Microsoft and SAP are using to invite and grow autistic talent to them. I attended part of last year’s Autism at Work conference mentioned in the video, and it was a very inspiring and informative experience. Here’s my blog post about that experience.
I think Tuesday posts are going to be the days where all of my not-quite-realized post ideas are going to go. So, without further adieu…
Reading the thoughts of a young adult on the spectrum (via Facebook) has been one of the biggest eye openers for me, because he brings up situations and viewpoints that I never conceived of.
The autism world with regards to therapeutic approaches is becoming increasingly marginalized. It’s like being in a circle surrounded by base camps…and you are either not invited to them, or you don’t quite agree with them. Interesting position to be in…and a great launching space to create your own base camp.
A parent told me that she was confused when someone asked her what her son’s “special gift” was. She shrugged and replied, “I told her that I didn’t know what it was or what she meant.” I glanced at him, looked back at her, and thought, “Spatial intelligence.” I don’t really see them as gifts, though.
I follow several families on the @sparcguidance on Instagram. They are all composed of pure awesome, and I love that they are sharing their journeys. It’s not easy and not for everyone, but I appreciate it.
A 2-minute questionnaire has been developed by researchers at Rutgers University that could identify autism in children much younger than the average age of around 5 years old. You can read more about the questionnaire here and here. This is fascinating, especially since it appeared accurate across different socioeconomic groups. I think that has a lot to do with the fact that the questions are in layman’s terms, as opposed to overly academic or analytic jargon.
Finally, a multiple intelligence note: As I’ve mentioned in my post on spatial intelligence, I’ve noticed that quite a few of my clients have been above average or exceptional in this category, regardless of sex, race, etc. It is not the easiest intelligence to spot, though. So here is a tip for parents: Someone with high spatial intelligence is often good at building, but they may be also really good at directions and orientating themselves to areas. They are really good at games that focus on spatial strategy (like Blockus or Tetris-like games), and can probably help with putting things together, be it a Lego set or that new chair for the living room. The key to remember in any of the intelligences, though, is that the person enjoys it. If they love it and are good at it, you have potentially found their purpose.
Programing Note: We’re on the lookout for guest bloggers, so please drop us a line at email@example.com if you want to write something about autism, multiple intelligence, life purpose, etc. We’re also working on our first workshop on multiple intelligence and uncovering them! We will give more information once everything is finalized, but we are definitely excited about it!
I’m currently in the process of testing out my Find Your Intelligence assessment, and a peer of mine offered to be a guinea pig. About 10 minutes later, she was staring at me in mild shock over the results. Her top intelligence area was Naturalistic, something that she wasn’t expecting at all.
We talked about what exactly that meant for her. In essence, she is both energized and calmed by being in nature. She spoke of how often she goes into nature to hike, swim, or just walk. As a child, she loved to climb trees and take care of her animals. It was present in nearly every aspect of her life so far, and when those activities were absent, she realized how much more stressful her life would become. In the end, I recommended that she try to do something “in nature” as often as she could during the week, even if it was just a walk outside around the block. A week later, she was still in awe of how she had missed such an obvious aspect of her life and happiness.
For those with naturalist intelligence, nature is like a reset button. I think this is the case for most human beings, but it goes double for those that are high in this intelligence. They need to connect to the living world regularly. It could be as simple as the aforementioned walk, or as intense as snowboarding or mountain climbing. Regardless, it is the interaction with nature that brightens them. For some, it also becomes a focus of exploration and fascination, and they become scientists and educators of nature. Regardless, nature helps them bring out their best.
I am always looking for others to try out the FYI assessment, so you can email me at firstname.lastname@example.org if you’re curious about it. While there are formal sessions and classes available, I also love just chatting about the MI theory and where other think they fall on it!
So, what are you waiting for, Naturalistics? Get outside!
Count on one of the parents of a client to spot this before I did. 🙂
I am proud to be featured in Psychology Today’s cover story, “Change Artists,” for their February 2018 issue. I did my interview (through email and phone) months ago, and had almost forgotten about it. I had no idea that it was going to be a cover story, though!
The article speaks to several people about how they were able to change their lives or their overall view of life. My part involved me talking about some of my insecurities, which is something I rarely talk about outside of friends, and how I overcame them. I am about halfway, and again near the end, as Angel Wilson.
Overall, it’s a really good article and while long, is worth the read. I hope it inspires a lot of people! Thank you to the author Abby Ellin; you did an amazing job, even while being sick! 🙂