Don’t worry, I didn’t miss the fact that April is Autism Awareness Month. Now that I’m settled, I wanted to give my own take on the month.
I saw this quote a few days ago, and it stuck with me. I’ve experienced this recently myself, and it does make you laugh when people think that they know you and actually don’t have a clue.
This was one of the first lessons I learned working with special needs children, particularly those on the autism spectrum. I had to learn that a vast majority of my clients knew exactly what they needed; the problem was that us “experts” weren’t listening. We were assuming that we knew what they needed. So naturally, we were met with resistance. For some of these so-called experts, the solution to that resistance is to push back harder, to literally break the spirit of the client so that they conform. Even in the beginning, I had an issue with this.
Instead, I chose to drop into the client’s world. I wanted to see how they saw things. While I can probably never know exactly how the world is to them, this simple state of being made me more aware of their awareness. The repeated actions aren’t mindless, but an attempt to regulate (same as how neurotypicals have quirks like biting our nails when nervous…except here you’re nervous most of the time). In doing this, I also quickly learned to never talk about them (in a negative way, especially) within earshot, because just like anyone else, they can tell if you’re talking about them. They may not be able to verbally tell you, but trust me, it will come out in some way. I’ve had to remind many parents and peers about this.
Finally, having said all of that…they can tell you more about themselves that I ever could. In these final days of April, I urge you to follow an autistic individual’s blog, Instagram, Tumblr, etc. You will see, hear, and feel the struggles and triumphs from those who live it, rather than those who work with them. I’ve included a few I follow that are awesome people (and yes, the number of women listed was kind of on purpose). If you are on the spectrum and have a social media presence (or know someone who does), leave your links in the comments as well. I’m going to try and highlight more of your voices going forward!